Lucia Medori

Lucia Medori is an EU affairs’ professional, working on health policy and digital sector at Instinctif Partners. Since September 2018, she chairs the Committee on Data for Healthy Societies and leading the drafting of its recommendations, addressed to European policymakers. Alumna of the College of Europe and Europeanist.

The digital era is rapidly reshaping the ways we perform, receive and perceive healthcare. Health data are essential ingredient to trigger the digital revolution and all its opportunities to improve the quality of care. However, the health data remained often unused and their eco-system is very much fragmented. Patients’ data are siloed in different systems, with heterogenous formats and standards, often involving a large variety of stakeholders, data quality and IT infrastructures. Those are amongst the challenges that the European Health Parliament is addressing in its policy recommendations – to be officially launched on 2nd April. The European Health Parliament (EHP) is a multidisciplinary movement connecting and empowering young European stakeholders to provide disruptive, actionable solutions for health. Each year, its five committees develop policy recommendations for the future of European health. Since September 2018, I have the pleasure to chair the Committee on Data for Healthy Societies and leading the drafting of its recommendations, addressed to European policymakers. Our calls for action cover a wide spectrum of topics, from data registers to ethical guidance. From my perspective, one of the most actionable call addresses the development of a truly European Digital Health Interoperability Framework. Why? Because we need to build a connected health eco-system that could allow patients to easily access their own data (also cross-border) while enabling physicians to provide better preventive and curative healthcare. How? We identified 3 main elements: 1. Broadening the scope of cross-border exchange of health data and fostering the role of the eHealth Network Building on the EU actions on electronic health records (EHR) and the related standard formats, new datasets should be promoted by the eHealth Network for cross-border electronic exchange of patients’ data. Furthermore, I think that the role of the eHealth Network in coordinating national approaches to the use of...

Lucia Medori

Chair of the Committee on Data for Healthy Societies European Health Parliament