Nick Hartshorne-Evans

Nick Hartshorne-Evans was diagnosed with Heart Failure in January 2010 at 39. His experience as a patient stimulated him into developing the only dedicated patient led Heart Failure charity in the UK, the Pumping Marvellous Foundation. Nick regularly engages and involves himself in both Global, National and Regional patient advocacy. Nick consults on the “patient opinion” with key stakeholders. His peers and partners across the health channels see him as a “Key Opinion Leader.” He works across the NHS and with NICE at a strategic and tactical level as a KOL.

Before the pandemic, we needed to get a grip on heart failure. However, the pandemic has complicated the heart failure revival due to the burden of COVID-19 and the by-product of patients with long-term conditions, particularly cardiovascular. Patients were not seeing their doctors or nurses regularly throughout the pandemic, creating a backlog of people waiting to be seen, like we have never seen before. There is a backlog of people who have missed their regular appointment, check-up, investigations, and treatments and those who are either symptomatic without a diagnosis or have had a diagnosis and have not had regularity and frequency in their treatment post-diagnosis. As a health system, we need to pick up from where we were before the pandemic. Utilise what we learned when we had to innovate at speed during the Pandemic and use this to build a more efficient and robust set of processes, using our learnings. We know nearly all our patients are in the secondary prevention space. These are people who have one or numerous other cardiac-related conditions and now also need to manage a diagnosis of heart failure. When we ask them what they would want to change, they always come up with these four points. Firstly, they want greater recognition of heart failure symptoms in primary care. Secondly, they feel that if they had been appropriately tested, their quality of life would, in many cases, have been better. Thirdly they tell us that it is essential to have access to a multidisciplinary team managed by heart failure specialists. Fourthly both the transition and discharge from the multidisciplinary team to primary care could have been done better in many cases, especially around communication to them and also communication between the different healthcare teams. In collaboration with a member of our Clinical Advisory Board,...