Nick Hartshorne-Evans

As a successful entrepreneur and business owner for more than 11 years Nick was diagnosed with Heart Failure in January 2010. His experience as a patient stimulated him into developing the only dedicated Heart Failure patient group in the UK led by patients – The Pumping Marvellous Foundation. Nick is also President of iHHub, which has attracted significant attention from international partners where it advocates for the global patient voice.

After significant learning about not only the condition but also the health economy Nick narrowed his focus to developing and evolving a charity that delivered patient led solutions created by the patients themselves. The charities knowledge and value comes from the beneficiaries and is a valuable resource to health economies and has attracted international exposure. Recruiting driven and innovative beneficiaries is a key driver for the foundation.  The Pumping Marvellous Foundation is seen as a global reference group for the heart failure patient community.

Nick regularly engages and involves himself in International, European, UK and regional patient advocacy along with delivering patient led collaborative solutions. He is a patient expert with NICE, a steering committee member on the NICE Chronic HF guidelines, patient lead for the European Heart Failure Policy Network, a member of the NHS England CRG for invasive cardiology, stakeholder and mentor in NHS England’s clinical entrepreneur programme and a Honorary Research Fellow at the University of Liverpool’s Management School. His peers and partners across the health channels see him as a “Global Patient Opinion Leader” and an “Over the Horizon Thinker.”