Social Research Director - Rare Barometer Programme Lead
Sandra Courbier joined EURORDIS as Patient Voices Manager in June 2015, later becoming Social Research Director – Rare Barometer Programme Lead. She is based in the Paris office.
She is responsible for consulting patients and their representatives to support advocacy and policy-making activities at EURORDIS. This is mainly done through the Rare Barometer programme which consists of surveys aiming to collect qualitative & quantitative data on the experience and expectations of rare disease patients and their families to facilitate and streamline the inclusion of patient perspectives into EURORDIS advocacy work. She also facilitates the generation of patient opinions on ethical, legal and social issues around rare disease research through European Commission-funded research projects.
Prior to joining EURORDIS, Sandra worked for the French Governmental information service, obtaining a broad experience of health-related surveys and studies, public communication and public affairs. While working for TNS Opinion in Brussels, the company responsible for the Eurobarometer, she also gained knowledge on international survey research.
She holds a master in survey methodology applied to political science and sociology from the Institut d’études politiques de Grenoble. Sandra speaks French and English.
1 blog from the author
Posted on 25.02.2021
Almost 12 months after the WHO declared a global COVID-19 pandemic, people with rare diseases can reflect on a turbulent year – even if there are some positive lessons to be learned in how services are delivered. While the pandemic continues, most reflections on the crisis come to a common conclusion: everyone suffered, but not […]